Sep 8, 2018 | Cystic Fibrosis, Music
I think it’s working. Four months ago, I started a new drug called Symdeko – the second generation drug that treats the actual root cause of CF on a molecular level (it doesn’t work for everyone, but does for those with a particular mutation...
Mar 18, 2018 | Cystic Fibrosis, Featured, Music
Ever since my Cystic Fibrosis became public knowledge a few years ago (as a result of my appearance on an international TV show), I’ve frequently been asked, “How are you able to sing opera when you have CF?!” I’ve never really...
Dec 23, 2017 | Breath, Music
Music brought us together. CF keeps us apart. In January of this year, I made a new friend. Her name is Ashley Ballou-Bonnema. Truth be told, I honestly don’t remember how I found her blog, Breathe Bravely. But I do know that from the moment I...
Oct 30, 2015 | Breath, Sweden 2015
This is my own narrative of my journey to the summit of Kebnekaise, the highest mountain in Sweden. This is a follow-up to the press story about it that I posted yesterday. Here you’ll find more background on why and how I did it. Where it all started… an...
Oct 29, 2015 | Breath, Sweden 2015
Defied disease – climbed Kebnekaise “Allt för Sverige” – Katie trained for six months in order to fulfill her dream. Aftonbladet, July 31, 2015. By Linn Elmervik. Translated from the original Swedish. The chronic disease could not stop her. A...
