Fluid Dynamics

Fluid Dynamics

I think it’s working.   Four months ago, I started a new drug called Symdeko – the second generation drug that treats the actual root cause of CF on a molecular level (it doesn’t work for everyone, but does for those with a particular mutation that I...
Breath of Heaven

Breath of Heaven

Music brought us together.  CF keeps us apart. In January of this year, I made a new friend.  Her name is Ashley Ballou-Bonnema.  Truth be told, I honestly don’t remember how I found her blog, Breathe Bravely. But I do know that from the moment I first read her...
Rare Earth

Rare Earth

The page is turning from summer to fall.  Every year I look forward to the crisp autumn mornings and the return of the rain.  But especially so for me this year, since summer has been a challenging one, full of highs and lows… both for me and for this country as...
The summit of Kebnekaise

The summit of Kebnekaise

This is my own narrative of my journey to the summit of Kebnekaise, the highest mountain in Sweden.  This is a follow-up to the press story about it that I posted yesterday. Here you’ll find more background on why and how I did it. Where it all started… an...